Tom's ME/CFS and Chronic Illness Page

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See, that’s what the app is perfect for.

Sounds perfect Wahhhh, I don’t wanna
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I thought I would share another image associated with this big, sympathetic and well-researched article in the Irish Times today.

Features myself plus:
Moira Dillon (of ME Advocates Ireland); Brian Hughes, professor of psychology in NUIG; Prof Douglas Kell, a biochemist working in Liverpool University; Dr William Weir, an infectious diseases expert; Dr James O’Donnell, director of vascular biology at the RCSI; Dr Ciara Martin (chairs a multidisciplinary group of clinicians and patient representatives devising HSE guidelines); Rosanna & Alan; Una Hearne.

MyalgicEncephalomyelitis ChronicFatigueSyndrome me cfs CFSME millionsmissing
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I was one of several people interviewed today for a large feature in the Irish Times.

Others include Moira Dillon (of ME Advocates Ireland); Brian Hughes, professor of psychology in NUIG; Prof Douglas Kell, a biochemist working in Liverpool University; Dr William Weir, an infectious diseases expert; Dr James O’Donnell, director of vascular biology at the RCSI; Dr Ciara Martin chairs a multidisciplinary group of clinicians and patient representatives devising HSE guidelines; Rosanna & Alan; Una Hearne.

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“ME: ‘I spend 20 hours a day lying down. I have four upright hours in the day’: Myalgic encephalomyelitis sufferers live with a range of conditions some have described as being ‘buried alive’ or as a ‘living death’”

https://www.irishtimes.com/health/your-wellness/2022/10/11/me-i-spend-20-hours-a-day-lying-down-i-have-four-upright-hours-in-the-day/

myalgic encephalomyelitis mecfs chronic fatigue syndrome cfs me/cfs
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Today was the first time I was on a bus in 28 years. 🍾🎉

I was using the Dublin Bus Travel Assistance Scheme to practice going on & off the bus in my electric wheelchair. A great, free scheme that should help me get my confidence & independence back.


Most of the practice was done at a terminus so I could do it at my own pace initially with nobody on board.

https://www.dublinbus.ie/Travel-Assistance-Scheme.html DublinBusNews

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